Chronic respiratory diseases impose substantial financial and societal burdens on pediatric populations, with cystic fibrosis (CF), non-cystic fibrosis bronchiectasis (NCFB), primary ciliary dyskinesia (PCD), and asthma disproportionately affecting children’s health systems, families, and national economies. Emerging data reveal that families of children with CF face median monthly costs of £825 in the UK[1], while asthma […]
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Low adherence causes frustration for health care professionals too!
Low patient adherence to respiratory treatments doesn’t just affect health outcomes—it deeply impacts the well-being of healthcare professionals (HCPs) who face daily challenges in managing these conditions. Research highlights how this issue fuels burnout, erodes job satisfaction, and creates cycles of frustration that ripple through care teams. Here’s what the evidence shows and how healthcare […]
Play as Essential Medicine:
Why Chronic Pediatric Care Needs Play-Centered Solutions For children managing chronic conditions—from diabetes to cystic fibrosis—healthcare isn’t just about treatments. It’s about sustaining quality of life through years of routines that can feel isolating, scary, or monotonous. Groundbreaking research from the University of Cambridge, published in partnership with Starlight, now underscores what we’ve seen firsthand […]
Building on Patient Involvement: A Focus on Cystic Fibrosis
Yesterday, I discussed the hidden power of Patient and Public Involvement (PPI) in healthcare innovation, highlighting its potential to create win-win-win scenarios for patients, innovators, and healthcare providers. The core message was that involving patients meaningfully leads to better health outcomes, more effective products, and increased efficiency within the healthcare system. Now, let’s bring this […]
Benefits of Public Patient Involvement & Engagement
Last week I was invited to attend HETTNorth by NHS England as a Patient Representative and take part in a roundtable discussion. It was clear to me that Public Patient Involvement and Engagement (PPIE) in healthcare / innovation is often seen through different lenses by various stakeholders. I wondered if there is another way to […]